Yorkshire and Humber Secure Data Environment (SDE) has called for people in the region to sit on a citizens’ jury to help shape how the NHS uses patient data.
It said it wants around 25 people from diverse backgrounds to take part in a dialogue around critical questions on the data. They will receive training and payment, and get to hear from experts including academic researchers, policy specialists and advocates.
Yorkshire and Humber is the first region to set up a jury for its SDE, part of the nationwide network for England that provides approved researchers working on approved projects with access to de-identified information in a secure environment.
Dr Phil Waywell, director of the Yorkshire and Humber SDE, said: “Our SDE is not just a world class research infrastructure – we are very much a listening one too.
“A citizens’ jury represents a true opportunity for people from all walks of life to make a real, tangible difference. It’s about ensuring decisions about data use aren’t made in isolation but are guided by the very communities they’ll impact. Every voice matters and every perspective counts.”
